Showing posts with label suffering. Show all posts
Showing posts with label suffering. Show all posts

Sunday, October 31, 2021

Life and Beyond

 Call it a calculated conspiracy of algorithms but over the last week I watched two 'recommended' TED videos, each dealing with with dimensions of life and death.

The first one was by Isabel Stenzel Byrnes titled the "The Art of Saying Goodbye", and the second one by Nancy Trivellato on Out-of-Body Experiences (OBE).

Isabel describes her own harrowing experiences with Cystic Fibrosis, numerous encounters with the death, end-of-life issues, and organ donation. She also talks about her realisation that there is no right or wrong way to say goodbye to a loved one, and that grief is an art, a deeply intellectual and spiritual process of making sense of loss.


I was particularly touched by this description of grief by Isabel's friend, Christine:

"If you were to ask me what stage of grief I'm in, I would say denial, anger, fear, profound sadness...sequentially, and then all at once, and sometimes not at all."

The second TED video by Nancy Trivellato, a researcher from Brazil, begins with a question that has long been familiar to ancient Indian philosophers - "Is the reality we live in the actual reality?". The point being made here was that the 'reality' being presented to us by our sense organs give us, at best, only a small fraction of the many realities that exist in parallel. Nancy makes this point by presenting a set of photographs of the cosmos, each showing how instruments that detect different parts of the electromagnetic spectrum see the same slice of the night sky so differently.

However Nancy's talk is not about the EM spectrum or the cosmos but something more subtle. She describes how as a child she had an out-of-body experience of 'seeing' a beloved uncle on a hospital bed in Sao Paolo. He and his wife had gone there for a gall bladder operation without informing anybody and were quite astounded to hear the little girl describe his hospital room.

The common thread that runs through both these videos is that there is more to life and death, and dimensions of consciousness that needs our attention with tools that are beyond the reach of existing scientific instruments and conceptual frameworks. 

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* TED Video - "The Art of Saying Goodbye" (Isabel Byrnes) - https://youtu.be/Dkffpibi-Dc

* TED - Nancy Trivellato on OBE - https://youtu.be/NMBNZspmn7I

* The Power of Two - A Twin Triumph Over Cystic Fibrosis - https://www.amazon.com/Power-Two-Triumph-Cystic-Fibrosis/dp/0826217540 

Friday, January 09, 2015

Being Mortal in India



A peaceful, painless death is one of life's greatest blessings.

Atul Gawande's latest book is born out of experiences with those who, for most part, did not have this blessing. It discusses the way in which medical technology and social norms tend to mislead, dictate or overrule the options available to those who are terminally ill.

The book also brought back deeply disturbing memories of my father's last days at a hospital in Kerala. Much like a patient described in the book, he to was shuttling between hospitals and diagnostic labs, with an irreversible nervous system failure. Towards the end it was appalling to see somebody who stayed away from hospitals "drugged into oblivion and tubed in most natural orifices as well as a few artificial ones".

Gawande, with his focus on the prevailing healthcare system in USA, misses on some of the more disturbing aspects of what the urban elderly face in India. The fact that my father retired from the central government service prolonged his suffering in more ways than one. The first question they asked you at hospitals was - "He is fully insured under CGHS, isn't he?".

A comprehensive health insurance package seems to have prompted private hospital docs to prescribe drugs, diagnostics and procedures that were completely unnecessary. Towards the end, all the family members had to give a signed undertaking to get him out of the ICU, back into the pay-wards.

The priorities of the elderly, and the terminally ill in India may be the same as those in other countries -- to avoid suffering, strengthening relationships with family and friends, being mentally aware, not being a burden on others,

The challenge is trying to ensure that these priorities take precedence over those of the doctors, the healthcare service providers, pharma & diagnostic companies, as well as 'loving' family and friends.


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LINKS

Homepage - http://atulgawande.com/book/being-mortal/